Saturday, June 8, 2024

MY MYASTHENIA GRAVIS

 MY MYASTHENIA GRAVIS

My Story

    Many years ago, I was afflicted with myasthenia gravis. I was undergoing a most stressful episode in my life. I was in my fifties—call it midlife crisis if you would. One day I felt intense pressure on my eyes. My first concern was glaucoma (a condition of increased fluid pressure inside the eye).

Immediately, I went to see an ophthalmologist, who subsequently referred me to a neurologist, who was. at that time the head of the neurology department in a well-known healthcare system in Cleveland, Ohio. After running some medical tests, he confirmed his diagnosis that I had myasthenia gravis.

 

My Conditions

 

I had developed ocular symptoms: ptosis (drooping of eyelids) and diplopia (double vision) in my myasthenia gravis.

My neck and limb muscles were also weak. I had to use a neck-rest to prop up my head when I drove; I could hardly use my fingers to control the mouse when I used my computer; and I could not raise my left hand without using my right hand to help prop it up.

Fortunately, I did not experience any weakness of the muscles of my pharynx, which could cause difficulty in chewing and swallowing, as well as slurred speech, in many cases of myasthenia gravis.

Naturally, I was devastated at the diagnosis and the conditions of my myasthenia gravis, which all happened within a matter of days. Worst of all, the neurologist told me that there was no known cure, although he reassured me that he could improve my disease symptoms.

Deep down, I knew it was stress that triggered the onset of my myasthenia gravis, but it was by no means the only cause. I also knew that if I did not have it then, I would probably have it further down the road. It was just a matter of time—only at that time I was not aware that I had been having the problem all along. I was carrying a ticking time-bomb too ready to explode on me.

Initially, I was confused and befuddled: Why did I get sick? For the past several decades, my health had been good, if not excellent—or so I thought. All those years prior to my myasthenia gravis, I had been quite health conscious in matters of foods and drinks; I had never been hospitalized all my life, and before the onset of my myasthenia gravis, I seldom paid a visit to the doctor. I had been having a clean bill of health up until then.

So, what was wrong with me?

I began to do some soul-searching and looked into my past.

Unlike most other kids, I did not have chicken pox until I was a teenager. That was a tale-telling sign that my immune system was different from that of others, or at least not as good as I thought it was. There was something amiss, but I did not know exactly what it was and I could not put a finger on it.

Then I recalled that when I was a child, I had been constantly bed-ridden with fever and coughing—my mother always worried that I could get infections from other kids, or worse, I would not live long.

I remember I never liked green vegetables and fish—which I would gobble up, stuff them in my mouth, and then spit them out as soon as I got out of the house. That was how bad I was!

As I stepped into my teens, my health conditions suddenly and significantly improved. In fact, all my symptoms of ill health disappeared soon after I had my chicken pox at the age of thirteen or fourteen. The experience of my chicken pox was excruciating, but it seemed to have changed my health conditions completely for the better.

Ever since then, I had not had any major physical ailment, except that I was still susceptible to the common cold—which I often overdosed myself with over-the-counter cold medications. I did not know that all those years I had been shuffling chemical toxins into my body!

There was another episode during my young adulthood. I was frequently involved in some artwork, which required me to make some fiberglass from newspapers by pouring some chemical solution over them. On one occasion, I accidentally mixed some toxic chemicals, giving out some toxic fume. After inhaling it, I passed out for some minutes, and I felt sick for several days.

My regular exposure to toxic chemicals in my artwork through inhalation must have damaged my immune system. Maybe the damage done was long-term and irreparable.

Nevertheless, for many decades, I had enjoyed relatively good health—or so I thought.

In my late forties, I had shingles—which was another red flag that there was something wrong with my immune system. However, I did not pay much attention to that episode that lasted several days.

In my early fifties, the stress in my life eventually triggered the onset of my myasthenia gravis, which was the outcome of my over-stressed immune system.


My Treatment

At first, I was prescribed pyridostigmine (mestinon) as the usual first-line treatment for my myasthenia gravis.

After several months, my conditions did not improve much. I was given another prescription, prednisone, a synthetic hormone commonly referred to as a “steroid,” for my myasthenia gravis. Prednisone acts as long-term immunosuppressant to suppress the production of antibodies. Essentially, it serves to stabilize my so-called “overactive” immune system.

The adverse side effects of prednisone for my myasthenia gravis included my decreased resistance to infection, indigestion, hypertension, weight gain, swelling of the face, thinning of skin, predisposition to osteoporosis, and potential development of cataracts and glaucoma.

The long list was not only depressing but also frightening. I was worried that I would have to take all my medications for the rest of my life not just for my myasthenia gravis but also for the many side effects of those medications for myasthenia graves, such as bone loss, weight gain, and high blood pressure, among others.

In the beginning, there was some improvement in the symptoms, but overall most of the symptoms were still there, and I was never lucky enough to experience some remission from the disease symptoms.

After almost two years on prednisone, my neurologist, seeing that there was little improvement in my myasthenia gravis, switched me to azathioprine, supposedly with fewer side effects. That medication did not seem to have any significant effect on my symptoms.

My Rude Awakening

I was in a dilemma: on the one hand, I needed improvement in my neuromuscular transmission to increase my muscle strength and eliminate my double vision; on the other hand, I knew that if myasthenia gravis did not kill me, the many side effects of the medications eventually would.

Then I made a decision to change drastically my diet in an attempt to discontinue my medications ultimately. The initial results were quite encouraging: I began to experience some improvement in my symptoms. Instead of gaining weight, I lost a few pounds; instead of jacking up my blood pressure, I made it plummet. I had won my first battle against the initial adverse side effects of medications of myasthenia gravis.

I knew that I had to do more—much more than that. I was in for my rude awakening: there was no miracle cure for my myasthenia gravis; only my holistic wellness would bring about recovery and natural healing.

 

The Road to Self-Healing

 

For me, the road to recovery had been a long and winding one.

I recognized that my immune system is not only an integrated network of cells that would protect me in times of an infection, but also a system with its many regulatory mechanisms that, if uncontrolled, would become my enemy instead of my friend.

I also realized that my immune system has to be protected by being fed the correct foods, as well as being given the optimum environment free from physical, emotional, and psychological stress, which may affect my immune system negatively.

Most important of all, I understood that my wholesome well-being, unlike my medications that “switched” off my immuno-response when it was overactive, may hold the key to my ultimate recovery and recuperation.

My parents might not have given me an excellent immune system. I could not have chosen my parents, but I can certainly choose my lifestyle, and I can control what I put into my body and even what comes out of my body.

I was determined to take matters into my own hands. I had to control my own health destiny.

I cherished the strong conviction that whatever my mind can conceive and believe I can achieve.

Meanwhile, I was also fully aware of the overpowering forces of Nature. To combat Nature is futile, but I can command Nature by obeying it, instead of going against it.

 

“Like water, soft and yielding,

yet it overcomes the hard and the rigid.

Stiffness and stubbornness cause much suffering.

We all intuitively know

that flexibility and tenderness are the way to go.

Yet our conditioned minds

tell us to go the other way.”

(Lao Tzu, Tao Te Ching, Chapter 78)

 

To obey Nature involves the recognition of the natural self-healing power of my physical body—if given the right environment.

MY MYASTHENIA GRAVIS

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